Skylar Marie Jones

It is with heavy hearts as we share the news that our precious Skylar is no longer with us. Kyle and I were able to hold her this morning as she took her last breath. We miss her more than words can express.

Our journey with SMA has been a long and tough one, but certainly not without joyous moments and full of love. It is because of that deep love that our hearts are hurting beyond belief right now. However, with that great pain comes great comfort in knowing that she is fully restored and present before our Lord Jesus in Heaven right now. As we continue to grieve, we will also continue to learn how to move forward, how to live and how to love. Skylar has taught us so much in her short little life (just shy of 21 months) and we are so grateful for the wonderful gift she was to us.

For those of you who have been impacted by Skylar, we are having a memorial for her this Saturday for all who want to come. It will be held at our church, Trinity Anglican Mission, at Two O'Clock in the afternoon. We've had lots of people ask already who to make donations to for SMA research instead of sending flowers and we're requesting donations be made to the Hope & Light Foundation. Our church is still accepting donations for our family expenses, but I think we have most of our costs covered now - we'll let you know if that changes.

Thank you all for your prayers and support throughout this long and intense journey. We will continue to need them as we find our way through the grieving process, but have already felt a peace and comfort beyond human understanding. Thank you for all who have sent text messages, emails and facebook messages. Please know that every word is being read, even if we don't respond. We feel so very blessed to have an incredible support system - including our doctors, nurses, church leaders and family, friends, neighbors and of course our own family.

Peace to you.